Mummy Bugg: October 2008

Saturday, October 18, 2008

M.O.T.Y.

Today I raked up some massive MOTY points. Mother Of The Year that is!!! Cleo has gone camping down at Lorne, with Jamie, Johnny and Katelyn. They took two tents. They left yesterday afternoon. About oneish today I get the phone call. Muuuuuuuuum the tent broke in the wind! We went out and when we came back it was ripped and fallen down... Can you go buy us a new tent and bring it down??? Gawd talk about frantic voiced LOL I said calm down, I will see what I can do. So I went out to Rays Outdoors. And picked up a bargain! Three man tent for $38 !!! I should ad, the tent that broke belonged to Johnnys dad. So why didn't they ring his family LOL cos they know, Nasi the sucker will come to the party.

I had a quick discussion with Paul about it, and we figured, we don't own a tent at all, and since she is going to the Lorne festival thingy for new years eve, it didn't hurt to buy one.

So yeah, Nasi goes and drives down the coast to deliver the tent. I must say, the kids were extremelly grateful, and Johnny offered to buy me lunch for my trouble. He's a sweetie!!!

But I didn't really mind, cos Lorne is down the Great Ocean Road, and it is the best place to be on a nice sunny day! There was a lovely cool sea breeze, and the sun was shining! So I delivered the tent, and then the girls asked me to stay and go shopping with them. It was really nice actually. They did seem to genuinely appreciate my effort, so that was really pleasing.

I did them a favour LOL I told the boys if they wanted to go back to the camp I would drop the girls back later LOL so by the time I delivered them, the boys had set up the tent. HAHAHA I am teaching them well.

So I figure I earned lots of MOTY points today, I reckon it will almost put me in the lead HAHAHA !!!!!

Sunday, October 5, 2008

Special Olympics Basketball

We have been in Dandenong this weekend. Andy played in the 2008 Special Olympics winter games. It was so much fun! They had athletes playing basketball, ten pin bowling and gymnastics. Of course Andy was in the basketball.

There were teams from 10 regions across Victoria. This was the first time that we have been involved. What an amazing event it was. They started of with an opening ceremony, where each region marched to some bagpipers, with a team representative carrying a sign saying where they were from. As you can imagine, there were many waves to the crowd and loads of smiles.

All the athletes were decked out in official Special Olympics outfits, they looked so cool!!!

We played two games on Saturday, and then one more today. Then this afternoon was the playoffs. We played off for 7th and 8 position. and we won LOL The team were ecstatic! They were so graceful in defeat, I really underestimated how they would react to a win. It was a tear gerker LOL The game was fantastic, I felt a little sad for our oposition, as they really didn't stand a chance, they were defeated badly in every game they played. But boy was it exciting for our kids! Paul used the timeouts to chat to the team and make sure they shared the ball around so that everyone on the team got a goal. With about 2 minutes to go, Andy was the only one who hadn't scored, so they set out to make sure he did. He ended up with about 5 shots at goal, and he finally got one in with about 30 seconds to go in the game. As you can imagine he went off LOL clapping and cheering himself hehehe.

At the end of the day, they had a closing ceremony where they all received ribbons and medals. The medal presenter was Lindsay Gaze! Yes Lindsay Gaze LOL father of Andrew Gaze. He said some amazing encouraging words to the athletes, and you could feel how genuine he was when he spoke and the enjoyment he got out of presenting the medals.

Oh should mention, Paul was the coach of Andys team. They needed an extra so since he has a few years coaching experience he was recruited. Turns out they liked his style, and have asked him to nominate himself for a coaches position at the 2009 National games in Adelaide. Apparently nominations have closed, but they were so impressed, they have made an exception for him.

The Barwon Region athletes entering the centre

This is Andys team, three people in the team have Down Syndrome

And Andy receiving his medal from Lindsey Gaze!

Friday, October 3, 2008

Nooooo Not the Prado

Well well well, it didn't take long to get some dirt for installment number two! We went on another driving adventure this afternoon. Cleo was driving sensationally! We went out to Deakin Uni again, and she was gunning it. Encountered and accomplished about 4 roundabouts, went up hill, down hill, did a few turns in the carpark, and then like yesterday, Cleo wanted to drive home. So onto the real roads we go.

We see this construction worker in a ute, he loses control on the dirt construction road, and Cleo says BAD EXAMPLE!!! DRIVE CAREFULLY and we continue... about 30 seconds down the road, round one corner, and then into the next. Move right MOVE RIGHT MOOOOOOOVE RIIIIIIIIIIGHT I say, but it was too late, we were ploughing through the road work star pickets. Collected four in all! As usual, bad mother, starts laughing, Cleo, starts laughing, Andy is shouting OH MY GOD, SHE CRASH THE CAR hehehehehe.

So I hop out, hopeing that there is no damage, alas I am wrong LOL not bad damage, but costly damage for sure! A couple of huge gouges in the front bumper bar.

Gotta say though, I am proud of miss Bugg, she laughed it off, stayed in the driver seat and drove home. Today, we didn't hit the roundabout, and parked out the front successfully.

And to think only on Monday, I was bragging to a girlfriend that this is the only car we have had that I haven't damaged LOL It doesn't look that bad, but it is a chunk out of the bumper, and as Pauly said, they will just replace the whole thing.

You can just see them, one at the back and

then three more in a pile at the front

And the car, the Prado, the only car we've bought that I haven't crashed yet!!!

Thursday, October 2, 2008

She's on the road

Yikes! Cleo got her learners permit on Wednesday. She did really well, and passed with 91%. I was impressed! So yesterday, we hit the road, and the kerb, and a roundabout HAHAHA I will elaborate

We live very close to Deakin University, and this is where most of the learners in our area go to get a feel of driving. So we went there. I let her get behind the wheel. First we made sure that she knew which was the brake and which was the eccellerator LOL. So off we go! I realised very quickly that we should of had some instructions about how to turn the wheel too! As in you don't spin it at a million miles an hour like you do in a dodgem car, or you will end up all over the road!!!

Mind you she is driving my Prado, it is a auto, and had very touchy brakes, and loads of power LOL We're not allowed to use Pauls car, which is a lot smaller, because it's a company car.

So we head up hill, probably a good choice, cos she can use the eccellerator a little, not going to badly. Then we all shout TURN TURN as she almost mounts the kerb!!! She says, but don't I have to keep left LOL Yes, love, but not THAT far left, we do not want to hit parked cars or mount the kerb to often!!! It's going well, we do the big lap of the Uni car park, and Cleo decides she would like to drive home. Sure, I thought, get her into it. So we head out of the Uni, and straight to a road work zone, where the man is standing with his stop sign. Cleo starts to panic. WHEN DO I STOP????? When you get closer to him love. So we get closer and BANG on goes the brake! Whiplash and kindey damage all round. The bloke holding the sign is pissing himself laughing, as are we! I am so not good at being serious about these things! So we proceed and then we have another bloke with the stop sign and we do it all again. Yes, more whiplash and more kidney damage.

We got through the road work zone and then she could sit on 60! She was very determined to get up to the speed limit. Myself and the back seat passengers, Andy, Lachie and Jamie, were not so keen. But she did it anyway. She did really well actually. We then came up to the main highway near our home, and had to do the traffic light thing. This was a little scarey LOL since it is a very main road, and lots of trucks don't stop at the lights! So we sit a the red light, me with my hand firmly holding the handbrake, just in case... She did fantastically! Takes off beautifully, manouvers through the next two sets of lights, drives over the bridge near home (with me saying MOVE RIGHT, MOVE RIGHT) and then we come to the roundabout on our street.

What does she do? Hits the eccellerator instead of the brake!!! Fortunately her reflexes are young and quick and she quickly moved to the brake. Once again, bad mother is pissing herself laughing!!! We then manouvered around the roundabout and into our street. She cruises down the road, almost straight past our house, we shout STOP, pull into the kerb! What??? she says, and quickly turns, mounts the kerb and stops parked halfway onto next doors driveway.

That will do love, I say! Hop out and I shall park it LOL

So all in all she actually did a really good job. Considering she was so scared of even getting her permit, she is now keen to get on the road. I think there are going to be many grey hairs coming my way in the next few months, and many tales to tell!!!

Yeah, so that is installment one.

The birth of Andy

Hi, I’m Narelle, wife to Paul and mum to three beautiful children, Cleo (15), Lachie (14) and Andy (11). Eleven years ago I gave birth to my third child. It was a boy - That was no surprise as I had found out the sex at the ultrasound. However learning that my baby boy had Down Syndrome, now that was a big surprise!
It was about four o’clock in the afternoon; Cleo and Lachie were sitting on my bed, eating BBQ shapes and watching Playschool. I was 37 weeks pregnant and had been to my obstetrician that morning to have a cervical suture removed. This was a procedure I’d had done with my last three pregnancies, after a late miscarriage prior to Cleo’s birth. I had this feeling that the baby was very low and warned my husband that if he indeed went on his work trip that day, our son would arrive. As they do, my husband thought he knew better, and off he went.
Around 4.15pm I was having reasonably strong contractions. By 5.45 pm my mum suggested perhaps we should be going to hospital! I packed the kids off to a neighbour’s house and was on my way. As I walked in the door of the hospital, I doubled up in pain over a couch in the entrance. I was put in a wheelchair and off to the delivery suite we went. Ten minutes later Andy was born! I was laughing; it had all happened so fast. Our little boy cried as they wrapped him up. Mum was in a spin; she had never attended a birth before! And as I had told my husband would happen, he had missed it all. The obstetrician had devastating news
The next three days I went along my merry way. Andy was not really into breast feeding, preferring to lick rather than suck, and he was rather sleepy. My mother informed me that I too had been very sleepy and that this was common for babies born three weeks early. I trusted her words.
A girlfriend came in to visit, and we were again laughing, “You didn’t sleep with the Chinese chef did you?” she commented “His eyes look really Chinese when he opens them” Day four came and I was looking forward to going home with my baby. I was also worried that he was not feeding properly. Around lunchtime I was again attempting to feed him. Paul had taken Cleo and Lachie to Ballarat to work with him for the day (about 1.5 hours from home)
The obstetrician arrived to visit me. “We think there a few problems with your baby - he doesn’t seem to be feeding very well does he?” she said. “Actually we think he has Down syndrome” My heart started beating a million miles an hour. (Strangely enough, as I am typing this it is happening now too!) A million thoughts were running through my head ‘I am only 29! Look at him - he is perfect! What would you know, stupid woman, and I don’t like you anyway. How the hell would you know if he had Down syndrome, and anyway that only happens to old mums. You are so wrong, and I shall prove it’ And then she went on to say, “Would you like to call your husband? Hold my hand and have a good cry” Of course I burst into tears, but no way was I touching her! How the hell was I going to call my husband and say “Oh by the way dear, they think Andy has Down syndrome”?
“You know you don’t have to keep him”
A couple of hours later, a paediatrician came to visit. He was pinching Andy’s skin, (I later discovered this was checking for dehydration), looking at his feet, poking at his eyes. “Mmmm hmmm, 99% sure he does have Down Syndrome, but we shall test to be sure” he said.Again I was thinking, “No way, look at him! You are so wrong!” Of course he was actually spot on. The next couple of days were filled with tears, and mixed emotions. How was I going to cope? And what had I done to my perfect little family? Why oh why didn’t I just stop at two!
My only recollection of a person with Down syndrome was a girl who worked in the sheltered workshop that my uncle had managed a few years back. She was obese, could not talk, and spent her day sleeping at the table. My other thought was that people with Down syndrome die when they are about 15. I don’t even know why I thought that, but I did. So was I going to waste 15 years caring for a sick child, only to have them die! My dad came in to visit soon after the diagnosis. He said, “You know you don’t have to keep him - people will adopt him and he will have a good life.” Those words still send a shiver up my spine.
A weekend paediatrician also came into visit me. His words have stuck with me forever. He said with a smile “So, baby has Down syndrome, bit of bad luck there - But you know what? - A whole new world is about to open up to you and you will meet many wonderful people because of this” His words couldn’t have been truer.Andy was a delightful baby On day ten we took our precious little man home. We had received the all clear for any heart problems - 50% of babies with Down syndrome have some form of heart problems. In the first few weeks I did spend lots of time going through the “Why me’s” I was also waiting for things to be difficult; wasn’t this supposed to be really hard? Isn’t Andy supposed to be sick? Aren’t I supposed to be run off my feet with appointments?” A physio from early intervention came to visit me. She offered me a photo album of all the babies she had worked with. I promptly told her what she could do with her album. I had my own son and I didn’t need to see photos of ‘more of them.’ I have laughed about that since.
She was a lovely lady, and when she left I did in fact look at the photos; and I was quite amazed at these beautiful kids. They all looked fantastic! Far from the images I had in my head. There were photos at gym classes, school photos, and some happy family snaps.
The first year of Andy’s life, he did get quite a few chest infections. On one occasion he ended up in hospital overnight. But he was a delightful baby. As I did with Cleo and Lachie, I spent lots of time playing with Andy. And much to my surprise he reached his milestones with incredible ease! He could roll over at 3 months, learnt to sit around 9 months, was crawling around 11 months and walked at 18 months. Not bad I say! Feeding was easy for us. I know some families who have had difficulties with solids, but for us Andy cruised through it all. Sleep wise he was a dream! And Andy was the cutest baby ever! His smile lit up his whole face. Every achievement Andy made was so special, and slowly but surely I began to realise that he was going to achieve great things. All the negative information I was given when he was born was starting to sound all wrong.
Thriving in the school environment Every day Andy would teach us something new. The joy he was bringing to our family was amazing. Andy was charming everyone he met, and he still does! My family and friends were extremely supportive. My one dear friend, Sam, spent hours at my place, as I did hers; always being there to listen or comment on every aspect of Andy’s life. We have shared lots of laughs and tears. I loved that she treated him like the other kids, and she was one of the few people I trusted to baby-sit him. Fast forward a little, and we were ready to start Andy’s education. I enrolled him at the same kinder Cleo and Lachie had been to. The kinder teacher was fantastic and we worked together to settle Andy into the routines. Again he was treated like everyone else and was thriving in the new environment. I recall going to pick him up one day and being greeted with a strange smile. “Andy has had a bit of a dip today” said the teacher. He had climbed into the water play tray when he knew no one was watching and was happily splashing in there! There were many laughs to come, Andy can be very entertaining and has the ability to work a crowd.
We also chose to send Andy to a mainstream school for his education. Again, we enrolled him at the same primary school where Cleo and Lachie were attending.
He is this year going into grade six. I am trying to think of a way to absorb the tears I will shed at his graduation ceremony at the end of this year. Our journey through school has been an interesting one! Andy has the help of an integration aide in the classroom for most of his day. The first couple of years were a little tricky as Andy had little intelligible language and he also used to run away! After he managed to leave the school grounds for around 20 minutes, the school took my concerns seriously and applied for funding to get safety gates. These days he rarely tries to escape! A star of the school play each year
While the school experience as a whole has been wonderful, it has not always been easy. But most of the teachers have been fantastic, only one gave us a bit of a hard time. Andy has learnt so much. He can read and write, loves drama, plays in a school basketball team, has been on school camp, and he is always a star at the school concert. Every year I am amazed at what he achieves. I often find myself racing to the car to burst into tears after something wonderful has happened. The reaction from the children towards Andy has been a real eye opener! I believe that having Andy in their class has made every one of them a better person. It is wonderful to watch them helping him. At least once a week someone will stop me after school to tell me about something Andy has done. Children will tell me, “Andy was so good at drama today, he’s a really good actor” or “I never knew Andy would be able to read, he read us a whole book in class today”
As a family we keep Andy involved in all aspects of our lives. He has been going snow skiing since he was three, he loves to go to the AFL games with Paul and Lachie, he rides a bike, loves playing the play station, and is obsessed with wrestling. He also loves to get breakfast for anyone who’ll take it (even if you don’t want cereal and juice, you will get it! And you will eat it!) Friends with AFL players and wrestling champions
Cleo and Lachie adore him. As with any siblings, the boys do fight. They love a wrestle and we have all the normal problems of “He hit me/I did not/You started it…” They too have gained so much from having Andy in their lives. Their friends accept Andy - there is the odd one who hasn’t and fortunately my kids are smart enough to know that they are not worth having as friends. I love hearing him muck around with Lachie’s mates, especially when they don’t pamper him and expect him to behave like any other kid.
Having Down syndrome comes with some bonuses too. Andy loves the AFL and when he goes to player functions, they always spend extra time with him; taking photos and chatting, I keep telling Cleo she should go with him! Last year Andy and Lachie also got to meet one of their heroes - John Cena. John Cena is a wrestling champion from America - he was out here on a promotional tour and the boys got taken out the back to meet him and get photos! I’m not sure who was more excited - them or Paul!
People who have Down syndrome can have such fulfilling lives, just like anybody else can. I am confident that Andy will eventually be able to live independently. He is now also learning lots of life skills. Dispelling the myths I hope that my story will help dispel some of the myths that people have about children with Down syndrome. There is so much testing done with pregnancies these days, and I wish that when a prospective parent receives news that their baby may have Down syndrome, that they were told some of the good things. I must concede, not all families are as lucky as us, and some babies with Down syndrome will have poor health for a period of their lives. But most babies with Down syndrome are healthy! Ask any one of the parents I know with a child who has Down syndrome and we all say the same thing. We wouldn’t change our children for the world!
Andy has taught us so much - patience, understanding, the ability to go with the flow, not to worry about things that really don’t matter. Before having Andy I was completely naïve about Down syndrome. All I could tell you was ‘The statistics show that after you are 35 you might have a child with Down Syndrome, and you don’t want that to happen!’
Ask me now and I will tell you… having a child with Down syndrome is so much better than I could ever have expected. He has changed our lives forever. It’s wonderful, he’s wonderful! I also feel privileged that Andy has given me the opportunity to meet so many other beautiful children who also have Down syndrome, and their wonderful families too. An EB weekend in Bright
In November last year we actually organised a weekend in Bright with the wonderful ladies I have met on Essential Baby. I would never have come across them had it not been for Andy. Six of us families chatted our way through the weekend, sharing many stories and lots of laughs! It was definitely the highlight of my year. So please, next time you come across someone with Down syndrome, don’t take pity. Give them a smile, and rest assured that they have quality of life. Their biggest hurdle in life is not their disability; it is dealing with a society that unfortunately is not as inclusive as it could be.

Mummy Bugg